take a picture, it lasts longer

My fellow AMC mom and Facebook buddy Sarah Kovac posted this video on her site. I loved it and wanted to share. 


Oddly we both watched this video and first connected with the staring girl. 

Maybe it is because like I shared, in my mind I am “normal.”  Who I am is all I know so it makes sense that there are days where I don’t feel different. 

At the end of this short clip, I also connect with the guy jamming {and I secretly would kill to be his friend…likes Radiohead, gets to do awareness videos..ummm awesome}. He is just waiting for the subway and rocking out. It’s no different from the guys sitting around with guitars and an open case to catch spare change or breakdancing to kill time. 

He doesn’t want to be eye-balled and classified by his wheelchair and Cerebral Palsy or in my case by my AMC. That is not what he is all about. It might impact how he lives, but there is so much more. 

I love that Thom Yorke from Radiohead is using his fame to bring awareness to the deck of cards he was dealt in this life.  I hope he does more.

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2 thoughts on “take a picture, it lasts longer

  1. So, it's interesting, I see this, and I see the girl as potentially sympathetic. She looks sympathetic, even though she's staring…frankly, I think she's trying to figure out the story with the guy. R makes fun of me because I'm OBSESSED with figuring out the story. HOW did something happen? WHY? I can see her as that…Isn't that ironic, though? So many of us identify with the girl, but really, more of us are like the guy…we're all "different" in our own ways…and where we vary is our ability to be proud of our uniqueness, strong enough to face the stares, and remember that our humanity actually trumps superficial differences. And of course – the world around us can be wildly fickle in terms of its ability to handle our "differentness"-es (yes, I made up a very awkward word there). LOVING your blog, b/c it's so thought provoking! we should have deep Cheetos-fueled philosophical conversations, between discussing toddler grossness. 🙂


  2. I'll admit I'm probably the staring girl. I'm curious about others and want to know their story. My daughter–she's totally rocking Radiohead right now and I sincerely hope that she stays that way. She could care less about what others think–she has this lovely ability to just do what she wants. I encourage that because I can still be a bit too conservative. I cry when she is "dissed" by a group or a person because she has Down Syndrome and is "different." Does she care? Nope. She'll continue to follow her "friends" or play on her own if she chooses. Life's a smile to her. I'm better, but it hurts me more than it hurts my kids to be rejected for being "different."


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