Weird Things…

I’m not sure if other AMCers feel this way but sometimes it
is the normal people that make my life hard.  

I might do weird things like not screw the pickle jar lid on
tight, make pill bottles no longer childproof, keep favorite cups and bowls at
a level that I can reach in the cupboard even if the rest are in a different
place, leave gas caps loose, park in a weird place to avoid slants that make
the car door close when I am trying to get out, stab a hole in the chip bag to
open since I can’t grip and pull it apart…. and the list goes on and on.

These quirks are actually quite strategic.  They are my methods of survival.

So with that said, when I reach for Nyquil and it’s screwed on tight or my
favorite cup is up high – I get so annoyed. I know deep down it is not like the world
is trying to mess with me.  My beloved friends and family are just doing what to them is normal.  Still it messes my mojo and suddenly it takes
me twice as long to do something.

Tonight I was driving home in my husband’s car. His gas
light came on and I stopped to fill it up. It was rainy, windy and January in
Wisconsin. So basically it really sucked outside.  A cold that chilled you to the bone.  I fought with his gas cap for like 15
minutes.  Cursing the audacity of putting
the cap on right. 

WHO DOES THAT?

Finally I gave in and asked the girl at the pump next to me
for help.  She was like 16 and opened
that sucker in like 2 seconds.  What a
show off.  I’m sure it was because I
loosened it up for her.  *wink*

Am I alone or does anyone else do things like this?

    

Toddler Trials

I always felt like my son and I had an unspoken
understanding.  I like to imagine that in
the final seconds before he was born God sweetly whispered to Oliver, “be good
for your mommy, she needs your help.”

Throughout the past three years my husband was more of the “mama
bear” in the house since he had to carry him and help with the things I couldn’t
do.  Oliver tends to give him a hard time on
things that he easily does for me.  I’m
not sure why but it gets frustrating.  

Last Friday my husband had a fairly serious ear surgery – removing
a cyst/tumor-like growth and rebuilding bones, using a drill, etc.  You can imagine how his head and ear felt
after all that. As we came home from the hospital and he landed on the couch, I
began my brief journey with solo parenting.

Let me start by sending any single moms out there a hug..and
a nap…it’s exhausting!

My husband was around but he was in pain, tired, medicated
and under strict orders to rest and not lift anything.  

One night Oliver asked my husband to lift him and he said he
couldn’t. Then Oliver said, “mama you can’t carry me, you’re too short.” This was the first time he verbally recognized
that I don’t carry him. His reason behind it still makes me grin…I know I’m no
giant but sheesh, 5’1 isn’t THAT short…

Since he turned three it seems as if he has learned a few
new tricks.

He likes to negotiate.

He knows he can out run me.

He knows I can’t grab him and carry him away when he’s
acting up.

Day one of getting him ready for daycare involved major
drama getting him dressed.  He wanted to
chill in his jammies and stay home with dad. 
Once we got outside to the car, he ran to the other side of the car wanting
me to chase him around the car.  Knowing
it was a battle I’d never win, I just opened his door and stood there surfing
Facebook on my phone until he got bored.

The next day came with an instant replay of getting
dressed.  My husband was trying to help
which just made it worse.  By the time it
came to the final battle of getting on his jacket, I was feeling like a sweaty
mess. I threw my coat on the ground while trying to put on his coat.  After getting him set, he managed to trip on
my coat…fall…hit his head and major waterworks followed. 

Shoot me now.

I was insanely happy to go to work.  Almost giddy. 

That night when I picked him up I was hoping for a clean
slate and some much needed mercy.  He
followed me to the car like an angel. He climbed in great.  After that it all went downhill. He refused
to sit in his car seat.  In the awkward
cramped car I didn’t stand a chance of pulling him up into the
seat and buckling him in without his cooperation.  It was dark, cold and I just wanted to go
home.  So I stood there in his door while
he sat in the front seat refusing to get buckled up.  I have no idea how long it took but
eventually I outmatched him and he made his way back to his seat.

As time passes the challenges change.  The days of dealing with carrying a car seat
are gone. No more changing diapers.  The
new battles are totally easier on the pride because in the end I WILL win but
are emotionally exhausting.

AMC mommies out there…what have you experienced? 

are you in the gutter too?

We are all in the gutter, but some of us are looking at the stars.
– Oscar Wilde

The other morning as I was getting in the elevator at work, a man held the door for me and said, “uh oh that doesn’t look happy”…

I simply smiled at him and the elevator whisked me away from him and an awkward conversation that was right around the corner.  It was way too early for that. I needed my skim vanilla latte or Diet Mountain Dew fix first.

As I sat down at my desk and started my day, his comment rattled around in my head.

That doesn’t look happy.

It is really easy to let situations and others tell us how to feel.  I am the first to admit that when I’m sick, my shoes are uncomfortable, days when I can’t do anything right or when those I love are down…I want to hide under a blanket or run away to a warm sandy beach by myself.  

In the end, how we feel is up to us. Every gloomy thing has an angle of sunshine. 

Yes…life with a weak body bites the big one.  Crutches are annoying.  I can’t do all things I want to do.  I have to ask for help.  People stare at me trying to figure me out.  Kids ask me why I have crutches every morning at daycare.  I want to run, jump and feel strong.

But…having AMC has introduced me to the world of doctors, therapist and other people with challenges. I met amazing people that I would have never known.  I am way more perceptive of how others feel. I have tapped into a world of people doing really cool things for others with what they learned from being sick, different, etc.  I learned how to feel okay about needing others. In a weird way I sometimes think that giving them a chance to help me can brighten their day too.

We are all given a deck of cards in life. How we chose to play our hand is up to us. You can dwell on the bad cards or embrace your pair of eights. 

hey baby, let’s go for a spin…

I received an email today from a fellow AMCer looking for adaptive ideas on driving.  It’s tough because we all have different challenges and our symptoms vary. 

It was not a big deal for me when I turned 16 because my hands are bent but my elbows are straight. I have enough reach and strength to steer, shift, etc.  My legs are also strong enough to push the gas/brake without any special gadgets.

However, I’m guessing some of you might use some things to help. I’d love it if you could add a comment on here with some ideas on what has worked for you. 

I love watching Little People, Big World to see all the things they have come up with to drive, reach things and live a normal life. 

The smallest tricks can make life so much easier. {like the 1-up ponytail…WOOT}

Please help!

 

 

operation skinny

My dream for this blog was to network with other AMCers to share tips, inspire each other and bring awareness to those “normal” peeps on what it’s like to have a disability.  

So when I receive messages from readers, I get really excited. I got one this week on a topic that I think we all struggle with…OPERATION SKINNY.

Well, there are those girls who seem to be able to eat everything and anything and remain tiny, cute and chipper from the latest sugar cookie high…but we don’t like them.  They never had to lie on the floor to button their jeans. {wink}

Maintaining weight takes work, willpower and dedication.  When your ability to move is limited, this adds a whole new twist.  A fellow AMCer who uses a chair asked for some tips on losing weight.  I am hoping you can comment on here and share what you do to stay healthy.

The level of mobility we have impacts so much. We are all different, but to get things started, I thought I’d share the things I try to do. However, I love pizza..fries…ice cream much more than my 5’1 frame needs…so these are just the things I know I should do, when I’m not being a pig.   🙂

1. Nike Fuel Band

I love this thing and like to track my steps. It inspires me to take a parking spot at the end of the lot or walk a few laps around my neighborhood at night instead of surfing the web. Yep, picture me doing laps around the hood with Carly Rae Jepson belting out Call Me Maybe in my headphones.

Basically, I try to not let my head hit the pillow at night until my 10,000 steps have been walked.  I was on a roll and then work became busy and followed me home, my son got sick, I got sick, a new show came on TV, etc. I have officially fallen off the wagon.  I need a kick in the butt to get back on. 

 

2. My Fitness Pal

This website and iPhone app rocks! You can scan the UPC bar on packages and it calculates the nutrition. You can also search for food or manually enter calories.

Set goals for your ideal weight and it will help determine the calories you need. I usually eat whatever I want but when my calories for the day are gone – I am done eating.  I found it made me become much more thoughtful about what I put in my mouth.

 

Both of these tools incorporate social media and the option to add those you know as friends. This helps motivate me and makes it a little bit more fun. What works for you?  

 

 

don’t cry over spilled milk

Have you ever dropped an entire gallon of milk?                                                       

Let me tell you, it makes a horrifying mess.

It bounces. The plastic cracks. Milk sprays, pours and splatters.

AMC hands are not super strong. I learned the hard way for trying to put away groceries fast. Should have used two hands. The mess was not worth those few seconds I was saving…

I saw this Magic Tap automatic drink dispenser infomercial and want to give it a try. I think it might make life easier and will decrease the odds of soaking up puddles of milk off my kitchen floor, running down my walls and in my shoes.

Check it out, maybe it would make your life easier too.

 

superheroes in my car…

I can’t believe an entire month passed since I last posted on here.  It’s pretty terrible. I think of things almost daily that would make great blog posts but it seems like work, laundry, family, friends and well, life in general, sucks up my time.

I’m not so sure how I’m going to find time for my fall TV line-up that’s about to return. My DVR is going to be smoking! {grins}

I went to pick up Oliver from daycare again the other day. This new sense of freedom is amazing. I’m still holding out for the day we go to Target together and can shop alone. Maybe he’ll carry the basket for me. I’ll probably cry. It will be sheer magic.

So back to the whole picking up Oliver from daycare story… All went well, we got in the car, cheered on the way home, I told him how awesome we are and then we landed in our driveway.

The small red button on car seats are brutal, they are so hard to push and totally hurt my finger. 

I climbed in the backseat and fought with it.  Meanwhile, Oliver made grunting noise and comments like, push hard mama, as I fumbled around, sweat dripping down my forehead…thanks to the never-ending heat wave this summer in WI.  {major dislike}

On the seat next to me was a pile of Oliver’s superheroes. I grabbed one and quietly pleaded, Dear Lord, please help me get him out. Oliver smiled at me and said, Dear Lord, help mama. I smiled back at his sweet face and with renewed zest, I attacked the red button with the hard plastic foot of good ol’ Aquaman. 

The button instantly popped open and Oliver scrambled out of the seat.  It was a sweet moment of victory, hearing my son’s first prayer for help and being with him as it was answered.

Life is good.